Post-Op Day... where am I?

Note: This is a post from Eric

I didn't post yesterday for a couple of reasons.

  1. Nothing really happened.

  2. I was destroyed with fatigue.

I had a later than anticipated evening at the hospital. I never have an easy time going back to the hotel, partly due to concern for Hannah and partly because I feel a little guilty going back to the room where I have a bigger bed, nobody interrupting my sleep to put a needle in me, and a toilet that is not on 4 legs beside the bed. I go, though, so that I can get a decent rest so that I am able to help Hannah as best I can. That night, however, was interrupted by some sort of domestic disturbance in the room next door at an ungodly hour of the morning. I never went back to sleep. The past few days are blurry.

Sydney left the next morning (Sunday) and so I made it as early as I could to Hannah's room to be with her. Before I could do that I had to move to a new hotel and make a run to CVS. I got there just in time to spend the rest of the day dozing on the couch, playing Bastion on the iPad (hat-tip Disco Pony), or making runs to the cafeteria.

I spent the night at the hospital since it was Hannah's first night without Sydney. She also had a particularly rough day yesterday dealing with the constipation, nausea, and other bonuses that come with surgery.

So, today is Monday, five days after surgery. I only know that because of the calendar on the wall. Days are beginning to blur together. I can only imagine how Hannah feels.

Today we moved to the in-patient rehab center at Johns Hopkins. I wish I could say it was as nice as the accommodations we had before. We are in one of the older parts of the hospital. The building we had spent the last 4 nights in was brand new and quite beautiful with a view of the city from our window! This one is a couple of stories up with a view of some rooftop air conditioning units. The room is a bit dreary. Fortunately Hannah has some flowers on the way from our friends at The 404 to help brighten things up. It could be worse. She could have been transferred to a hospital in the burbs. Further away from the hotel.

Tomorrow they perform a detailed assessment of her current neurological deficits, compare this to what she could do before and what we hope she can do in the future (everything she did before, duh). The next day (Wednesday) they present her with a plan that they've put together for rehabilitation as well as help us to understand what we can expect when we get back to OKC.

Since not much else happened today, I can at least give you an idea of what Hannah could do before:

  • 7 years ago she could do pretty much anything. Hiking, long walks, beating me up, etc.

  • After her first pregnancy she dealt with sciatica in her right leg. This appeared to get better over time via Chiropractic care.

  • After her second pregnancy 2 years ago, Hannah's sciatica came back bigger and badder. Over the past two years her right foot started to noticeably drag, her leg shrank in size as it weakend and it began to go numb. She had trouble hiking, being on her feet for long, and the slightest tangle with one of the kids (we call our two-year-old Blunt Force Hazel™) would put her in a great deal of pain.

  • This past August I urged her to see our doctor about her trouble which led to the initial MRI that detected the tumor in her spinal chord.

  • Soon after she was hospitalized for pain in her abdomen which turned out to be caused by continuing damage to the nerves in her spinal chord. She also began to feel slight numbness in her left leg. She couldn't do much other than take medications for the pain, and sleep.

We're hoping to get her back on her feet, as it was before her first pregnancy 7 years ago when she could pretty much do anything.

As of tonight her right leg is completely numb and her left leg is slightly numb. She does have limited sensation in both legs in certain locations. When she stands, she looks at her feet to know where they are. Her right foot is dropped and her ankle tends to roll out. She's looking at getting brace for it.

It would appear that Hannah has a hard road ahead of her. I'm glad she has the grit and the faith to see it through.

Thank you all for your support.